Team Mila featured on IBE News
An Erskine girl is proving she is a true fighter after being diagnosed with a life-shortening illness when she was only three weeks old. Mila Marr, aged two, was sadly diagnosed with Cystic Fibrosis, a genetic condition that sees only half of its sufferers live to celebrate their 40th birthday. The faulty gene slowly destroys the lungs and digestive system and is carried by over two million people in the UK, most of whom have no idea. For Mila, her daily routine consists of a cocktail of medication, including antibiotics twice daily and creon granules when she eats, which helps her to digest her food as she is pancreatic insufficient. Parents Vicky and Paul perform physiotherapy, lasting 30 minutes per day, which they say is highly unpleasant and upsetting for her to go through.
Mila’s family and friends have gotten together to form #TeamMila and are organising a variety of challenges, activities and a charity ball event to help raise funds for the Cystic Fibrosis Trust. Over the past year, they have raised £20,000 which will help fight to beat cystic fibrosis and make a daily difference to the lives of sufferers and carers.
Vicky said: “We found out about Mila’s condition after a blood test when she was three weeks old. “When I found out, it was horrendous, I cried for a week. “She has to take antibiotics daily and half and hour of painful physio which takes up a bit of time. “We try and keep her as fit as possible with trampolining, dance and swimming, as it is good to keep her exercising. “She looks perfectly healthy and happy, it’s all internal and can’t be seen which is why it is often called the invisible illness. Despite this, she is a very happy wee girl, always full of beans. “I couldn’t ask for a better daughter, everyone loves her and wants to help. “We started fundraising last year with friends and family and it has since escalated with people in the community wanting to take part too. “So far we’ve done the likes of marathons and Tough Mudder to raise funds and future events include a charity ball and a coffee morning. “There’s even two wee toddlers doing a hill walk to raise funds for the charity and a few young kids hold buckets when we fundraise too. “Team Mila are trying to raise money and awareness in the hope that one day, they will find a cure for this horrible condition. “Mila is a fighter and is loved by all that she meets and we are doing everything for her to live a long and happy life.”